E-patient Dave Debronkart*, Society for Participatory Medicine, Nashua, United States Track: Practice Presentation Topic: other Presentation Type: Oral presentation Submission Type: Single Presentation Building: Joseph B. Martin Conference Center at Harvard Medical School Room: Auditorium Date: 2012-09-16 03:30 PM – 04:30 PM Last modified: 2012-09-12

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Three years ago I clicked the button to move my patient portal data to Google Health, and what came across was garbage. As an ordinary IT user in my day job, I blogged about the implications of invalid medical records. A media firestorm resulted, and Dr. Eysenbach invited me to be the opening keynote at Medicine 2.0 2009. The title: "Gimme My Damn Data - Because You Can't Be Trusted with It."

Much has happened since then: massive Federal regulations have been developed in the US for Meaningful Use, billions of dollars are being rolled out to implement EMRs and HIE, and patients / consumers are becoming newly conscious of health data issues.

In this session I will review the status of our personal health data, in concept and in reality, and present a new model I've been developing of how useful information comes into existence and attracts, or is found by, the people who need it. At the center, of course, are the ultimate stakeholders: the patient and family.