Jane Kaye*, University of Oxford, Oxford, United Kingdom Matt Jameson, HealthUnlocked, London, United Kingdom Will Dixon*, University of Manchester, Manchester, United Kingdom Sharon Terry*, Genetic Alliance, Washington DC, United States Dave Lund, HW Communications Ltd, Lancaster, United Kingdom Edgar Whitley*, London School of Economics, London, United Kingdom Track: Practice Presentation Topic: Participatory health care Presentation Type: Panel Submission Type: Panel Presentation Building: Mermaid Room: Main Auditorium Date: 2013-09-24 12:15 PM – 01:00 PM Last modified: 2013-09-25

If you are the presenter of this abstract (or if you cite this abstract in a talk or on a poster), please show the QR code in your slide or poster (QR code contains this URL).

The potential to involve patients in the research process using interactive web 2.0 platforms is significant. In this session we present perspectives from a range of initiatives which involve patients as partners and see them as central to the research process. Health Unlocked creates online communities that allow patients to share experiences, monitor their health, and feedback the outcome of their treatment with doctors online. Arthritis Research UK is developing INBANK to provide the infrastructure for the rapid collection of clinical data linked with biosamples, with the intention of furthering the translational research process. Reg4All is creating a comprehensive, crowd-sourced, cross-disease registry to help accelerate translational research for over 1,000 diseases. The Dynamic Consent project involves developing an ‘e-consent’ app that allows users to give consent electronically, and allows them to monitor how their samples and data are used. Each presenter will give a ten minute presentation on their project and how it will improve people’s involvement in the translational research process. The aim of this panel is to engage with the audience so there will be 20 minutes for discussion.

Matt Jameson - Health Unlocked
Will Dixon – INBANK
Sharon Terry – Reg4All
Dave Lund/Edgar Whitley – Dynamic Consent

Moderator: Jane Kaye, University of Oxford