Medicine20.net User Profile: Paul Wicks

Paul Wicks (paul_wicks)
PatientsLikeMe.com
 
Contact Information
Email

Privacy settings prevent us from displaying this information.
You may be able to see more details if you login

Mailing address

Privacy settings prevent us from displaying this information.
You may be able to see more details if you login

Phone

Privacy settings prevent us from displaying this information.
You may be able to see more details if you login

Fax

Privacy settings prevent us from displaying this information.
You may be able to see more details if you login

Relationships

You must be logged in to add relationships.
Click here to log in.

QR Code

If you are this person, please use the following QR code on your badge or on your poster - this links users with a QR scanner/mobile device to your public profile page.

qrcode

Conferences

Attended Medicine 2.0'11 (Stanford University, USA)
Friday, September 16, 2011 to Sunday, September 18, 2011
Click here to visit this conference's website

Attended Medicine 2.0'12 (Boston, USA)
Saturday, September 15, 2012 to Sunday, September 16, 2012
Click here to visit this conference's website

Attended Medicine 2.0'13 (London, UK)
Monday, September 23, 2013 to Tuesday, September 24, 2013
Click here to visit this conference's website

Accepted Abstracts

Medicine 2.0'09 (Toronto, Canada)

Patients Informing Practice: Post-Marketing Drug Data in PatientsLikeMe, an Patient-Centered Online Community (closing keynote - winner of the JMIR Medicine 2.0 Award 2009)
Jeana H Frost*, Sally Okun, Paul Wicks, James Heywood

Background: Typically, evaluating a new use of an existing drug is either expensive and time consuming or anecdotal and unstructured. In some cases, researchers conduct clinical trials to test off-label uses. Yet in many situations where drugs are off-patent, or are only used by a small population, providers and patients must rely upon their own individual-level experience to inform clinical practice. In this work, we explore how a patient-centered online platform could supplement trials to c...

Medicine 2.0'12 (Boston, USA)

"But Will It Scale?" Lessons in Growth from PatientsLikeMe
Paul Wicks*

Innovations abound in the field of medicine 2.0 – everything from mobile health apps to social networks, online portals, device arrays, and provider systems. A frequently recurring challenge seems to be the ability to take pilots and single-disease projects to a broader audience, whether that is a new disease, a new population segment, or a different level of engagement that is required. PatientsLikeMe is an online data-sharing research platform founded in 2006 for patients with a single di...

Medicine 2.0'13 (London, UK)

Separated by a Common Language: Can the USA and UK Innovate Their Way Out of Their Healthcare Challenges?
Paul Wicks*

In the United States the National Health Service (NHS) is contentious. Free healthcare at the point of delivery and universal access for all have been described as the United Kingdom’s “national religion” but approaches to evidence-based service provision and equality for all are derided by some US critics as “socialist healthcare rationing” and were even lambasted during the 2008 Presidential election as containing (quite imaginary) “Death Panels”. While the idea of cheaper hea...

Big Data Panel
Chris Paton*, Jim Davies*, Iain Buchan*, Paul Wicks*

The transition from paper-based to electronic health records has generated, and continues to generate, large quantities of data. The main uses of these data are to support the direct care of individual patients and to guide the management of healthcare systems for populations. The data also have considerable potential to fuel research, but this asset has scarcely been harnessed for patient and public benefit. Beyond the clinic, healthcare consumers worldwide are adopting mobile and web-bas...

Full Paper Publications

interactive Journal of Medical Research

Severe Loss of Appetite in Amyotrophic Lateral Sclerosis Patients: Online Self-Assessment Study
Teresa Holm, André Maier, Paul Wicks, Dirk Lang, Peter Linke, Christoph Münch, Laura Steinfurth, Robert Meyer, Thomas Meyer
Interact J Med Res 2013;2(1):e8

Feasibility of a Web-Based Survey of Hallucinations and Assessment of Visual Function in Patients With Parkinson’s Disease
Mary Lou Jackson, Peter J Bex, James M Ellison, Paul Wicks, Jennifer Wallis
Interact J Med Res 2014;3(1):e1

Preferred Features of Oral Treatments and Predictors of Non-Adherence: Two Web-Based Choice Experiments in Multiple Sclerosis Patients
Paul Wicks, David Brandes, Jinhee Park, Dimitri Liakhovitski, Tatiana Koudinova, Rahul Sasane
Interact J Med Res 2015;4(1):e6

Journal of Medical Internet Research

Sharing Health Data for Better Outcomes on PatientsLikeMe
Paul Wicks, Michael Massagli, Jeana Frost, Catherine Brownstein, Sally Okun, Timothy Vaughan, Richard Bradley, James Heywood
J Med Internet Res 2010;12(2):e19

Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe
Jeana Frost, Sally Okun, Timothy Vaughan, James Heywood, Paul Wicks
J Med Internet Res 2011;13(1):e6

Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)
Paul Wicks, Michael Massagli, Amit Kulkarni, Homa Dastani
J Med Internet Res 2011;13(1):e12

Quantifying Short-Term Dynamics of Parkinson’s Disease Using Self-Reported Symptom Data From an Internet Social Network
Max Little, Paul Wicks, Timothy Vaughan, Alex Pentland
J Med Internet Res 2013;15(1):e20

Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians’ and Patients’ Perceptions About Amyotrophic Lateral Sclerosis Treatments
Carlos Nakamura, Mark Bromberg, Shivani Bhargava, Paul Wicks, Qing Zeng-Treitler
J Med Internet Res 2012;14(3):e90

Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level
Gabriel S Eichler, Elisenda Cochin, Jian Han, Sylvia Hu, Timothy E Vaughan, Paul Wicks, Charles Barr, Jenny Devenport
J Med Internet Res 2016;18(5):e110

Correction of: Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level
Gabriel S Eichler, Elisenda Cochin, Jian Han, Sylvia Hu, Timothy E Vaughan, Paul Wicks, Charles Barr, Jenny Devenport
J Med Internet Res 2016;18(10):e271

Scaling PatientsLikeMe via a “Generalized Platform” for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising
Paul Wicks, Eileen Mack Thorley, Kristina Simacek, Christopher Curran, Cathy Emmas
J Med Internet Res 2018;20(5):e175

Published With

This user's work may be related to

Users who Paul Wicks has said they are a friend/colleague of

Users who identified Paul Wicks as friend/colleague and who Paul Wicks considers friends/colleagues

Users who Paul Wicks said they have met

Users who said they have met Paul Wicks

Users who have said they have met Paul Wicks and who Paul Wicks says they have met

Users who Paul Wicks said they want to meet

Users who said they want to meet Paul Wicks

Fans of Paul Wicks

Click here to edit your profile page



Medicine 2.0® is happy to support and promote other conferences and workshops in this area. Contact us to produce, disseminate and promote your conference or workshop under this label and in this event series. In addition, we are always looking for hosts of future World Congresses. Medicine 2.0® is a registered trademark of JMIR Publications Inc., the leading academic ehealth publisher.
Creative Commons License
This work is licensed under a Creative Commons Attribution 3.0 License.