Attended Medicine 2.0'08 (Toronto, Canada)
Medicine 2.0'08 (Toronto, Canada)
Empowerment by Participation in Online Support Groups for Patients with Arthritis, Fibromyalgia and Breast Cancer
Background: Ever since the rise of online support groups much is expected of the potential empowering effect of participation for patients . Although many have pointed at this empowering effect [2, 3, 4, 5], little empirical evidence exists for how patients feel empowered. Objectives: We explored if and how people with arthritis, fibromyalgia and breast cancer feel empowered by their participation in online support groups. In addition, we were interested which processes that take place in...
Patient-initiated Online Support Groups: Motives for Initiation, Extent of Success and Success Factors
Background Nowadays patients are able to choose between many online patient support groups [1, 2]. Most groups are initiated by individual patients or patient organizations. The threshold to start an online support group is low . With patient-initiated groups now mushrooming, a need for an increase in research on this type of online support group is warranted . Objective In a qualitative study, we explored the motives and goals of people who take the initiative to start such a group, s...
Medicine 2.0'11 (Stanford University, USA)
OncoCompass: an E-health Management Platform to Facilitate and Innovate Supportive Cancer Care
Background In the Netherlands, government policy statements and national guidelines reflect broad scientific and social support for a structured, integrated approach to supportive care in cancer patients. However, care providers often lack the operational and organizational means to deliver care in a cost-effective manner. IT applications can be used as helpful tools and have the potential to improve the efficiency of care. By developing an e-health management platform supportive cancer car...
Full Paper Publications
Journal of Medical Internet Research
Self-Reported Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups
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