Attended Medicine 2.0'10 (Maastricht, NL)
Attended Medicine 2.0'13 (London, UK)
Attended Medicine 2.0'14 Europe (Malaga, Spain)
Medicine 2.0'10 (Maastricht, NL)
Pipo - Web 2.0 Portal for Information in Pediatric Oncology
Background: In Germany every year around 1750 children develop cancer before the age of 19. Often directly after the diagnosis patients and their family members search for further information online. Even though there are many reliable information sites, even for different age groups, it is often impossible to find and to differentiate between useful and correct sites and sites which are not helpful due to the information overloads the internet offers. Further, patients and family members lo...
Medicine 2.0'13 (London, UK)
Proof-of-Concept – Easily Identifying and Extracting Potential Patients in Facebook
Background: Online social networks are online services, platforms, or sites that focus on facilitating the building of social networks or social relations among people who share interests, activities, backgrounds, or real-life connections. They allow users to communicate and to share ideas, activities, events, and interests within their individual networks or for a broad public audience. With over 900 million users, Facebook is regarded as today’s largest and most successful social network....
Medicine 2.0'14 Europe (Malaga, Spain)
Risk Analysis of Different Use Cases Which Might Lead to Patient Identification within Facebook
Background: Online social network sites are mediated public topologies which allow users to create online profiles and develop online communities with common interests and activities. With over 1.3 billion users, Facebook is today’s largest and most successful social network. According to a survey by the National Research Corporation, patients are also using Facebook for health information. Despite of privacy concerns some patients share their experiences, connect with each other and organi...
Care4Talk – Secure Messenger for Clinical Settings
Background: The amount of communication via social networks and messengers in the fashion of Facebook and WhatsApp has rapidly increased since their introduction. Simultaneously, the usage of services such as SMS and MMS have started to decrease continually and have been superseded by Facebook and co. The usage of such messaging services in a clinical context, e.g. between patients and doctors sounds very promising, too. However using these networks – especially their usage in a clinical se...
Attention Facebook – Patients and Health Care Provider Meet in Social Networks
Background: Nowadays more and more people communicate on health issues via the internet. They use social networks like Facebook or Twitter to exchange views, to get information or to support each other. Mainly questions concerning health or diseases of oneself or relatives are in focus. Social networks offer good ways to interact and exchange experiences with other people and to receive hints and information by people one knows or believes to know. Health care providers also use social networ...
Social Media Guidelines for Communication in Health Settings in Germany
Background: The use of social networks has increased tremendously within the last years. Today, Twitter, Facebook and others are used to find information on medicine and health topics as well. Those services are also used by patients to get in contact with each other or with their physician. For physicians, on the other hand, this kind of communication can lead to legal and ethical issues, when it comes to data privacy. In Germany, the German Medical Association has published recommendations ...
Full Paper Publications
Interactive Journal of Medical Research
Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases
JMIR Research Protocols
Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study
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