Attended Medicine 2.0'13 (London, UK)
Attended Medicine 2.0'14 Europe (Malaga, Spain)
Medicine 2.0'10 (Maastricht, NL)
“Oh Dear, Should I Really Be Saying That on Here?” Issues of Identity and Authority in an Online Diabetes Community.
Background The promise of self-management by increasingly ‘expert’ patients has obvious attractions for health services needing to make cost-savings. Diabetes is an area which has seen a plethora of self-management initiatives in recent years, often mediated by technology which the patient uses independently or in collaboration with health professionals. We established a closed virtual community for a group of patients with type 1 diabetes who used insulin pumps, with the aim of support...
Background The economic, social and psychological burden on informal carers of people with dementia is huge, and their practical needs for support, as well as their needs in relation to the emotional impact of caring, are especially high. Web 2.0 technologies are emerging as tools to help carers to reduce social isolation, to seek health information and support, to share experiences with others, to undertake remote consultations, to remotely monitor the person they are caring for, and to org...
Medicine 2.0'11 (Stanford University, USA)
Participants' Experiences of an Online Intervention and Randomised Control Trial
Background The internet has become host to a growing variety of interventions from tools to treat depression or increase physical activity, to helping the user stop smoking. Whilst there is an expanding body of literature evaluating the effectiveness of these interventions, fewer studies have examined participants' motivations and experiences of engaging with an intervention that is delivered solely online. This can inform how we may tailor interventions to increase uptake, compliance and ma...
Going (Digital) Native: Involving Young People in Medicine 2.0 Research
The term “digital natives” has increasingly been used in academic discourse to describe the generation of young people who have grown up using web 2.0 technologies as part of their everyday lives. When conducting research with the aim of developing web 2.0 based interventions to support the healthcare needs of young people, it is important to involve young people in the design of the research. Involving young people can confer many benefits, including; maximizing the chances of adoption o...
Medicine 2.0'13 (London, UK)
YouTube and Patient Activism: Online Video and the Generation of ‘Experiential’ Evidence
Background: Started in 2005, YouTube is a popular video sharing platform. There are numerous health-related videos on YouTube, many of which have been created by individuals affected by different conditions. These videos are often extremely compelling, containing detailed information about people’s personal experiences and opinions. Considerable concern has been expressed about the consequences of inaccurate or dangerous information disseminated through online videos. At the same time, onli...
Sharing Experiences Online: Design of a Randomised Trial to Determine the Feasibility and Efficacy of Three Novel Internet-Based Interventions Based on Patient Experience.
Background: Health systems, faced with changing demographics, increased burden of chronic disease and an uncertain financial landscape, have prioritised strategies which promote self-management and the active engagement of people in their own care. The use of the internet as a tool to support such patient-centred initiatives is growing. It is clear that patients use the internet to seek out more than just facts and figures about illness and treatments. People also want practical advice from ...
Medicine 2.0'14 Europe (Malaga, Spain)
How Might the Internet Help Level Health Inequalities?
Background Studies examining the existence and impact of a ‘digital divide’ have largely focused on general population based observations, examining specific demographic groups; most commonly by age, ethnicity and socioeconomic status. There is an observable divide in use of the internet to access healthcare and health information within these groups. Large surveys typically show that older people, ethnic minorities and those in lower socioeconomic groups are less likely to have a...
Background As the health internet has evolved it has increasingly become a forum for patients to exchange information with other patients. Theoretical work indicates sharing experiences of health and illness online can bring benefits such as support for self-management and self-efficacy in long-term conditions, encouragement for positive health behaviour change, and improvements in social support. Objective To assess the feasibility and measure the impact of an internet-based interventi...
Full Paper Publications
JMIR Medical Informatics
Implementing an Open Source Electronic Health Record System in Kenyan Health Care Facilities: Case Study
Journal of Medical Internet Research
Electronic Health Records Should Support Clinical Research
Why Are Health Care Interventions Delivered Over the Internet? A Systematic Review of the Published Literature
The WWW of the World Wide Web: Who, What, and Why?
Stakeholder Perspectives on the Development of a Virtual Clinic for Diabetes Care: Qualitative Study
A Virtual Clinic for Diabetes Self-Management: Pilot Study
The Characteristics and Motivations of Online Health Information Seekers: Cross-Sectional Survey and Qualitative Interview Study
Active Assistance Technology for Health-Related Behavior Change: An Interdisciplinary Review
Effectiveness of a Web-Based Cognitive-Behavioral Tool to Improve Mental Well-Being in the General Population: Randomized Controlled Trial
A Web-Based Program Improves Physical Activity Outcomes in a Primary Care Angina Population: Randomized Controlled Trial
The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness
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