Medicine20.net User Profile: JenniferStinson

Jennifer Stinson (JenniferStinson)
The Hospital for Sick Children
 
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Accepted Abstracts

Medicine 2.0'11 (Stanford University, USA)

Online Patient Education for Teenagers: Disease Self-Management and Medical Decision Support
Ross Hetherington*, Jennifer Stinson, James Wright, Vicky Breakey, Cathy Schmidt, Sandra Donaldson, Victor Blanchette

AboutKidsHealth is a 20-member consumer health informatics team that is the patient education group at The Hospital for Sick Children in Toronto, Canada. Our major project is the child health consumer information site www.AboutKidsHealth.ca. It has been estimated that up to 30% of teenagers have some form of chronic condition. These youth face issues including medication compliance and other disease management protocols; a range of psychosocial issues including autonomy, peer relations, body ...

Medicine 2.0'12 (Boston, USA)

Development and Testing of a Multidimensional IPhone Pain Assessment Application for Adolescents with Cancer
Jennifer Stinson*, Lindsay Jibb*, Paul Nathan, Anne-marie Maloney, Donna Johnston, Carol Portwine, Lee Dupuis

Background: Pain is one of the most common and distressing symptoms reported by adolescents with cancer (AWC). Despite advancements in pain assessment and management research, pain due to cancer and/or its treatment continues to be poorly managed. Our research group has developed a native iPhone application (app) called Pain Squad to tackle the problem of poorly managed pain in the AWC group. The app functions as an electronic pain diary and is unique in its ability to collect data on pain i...

Medicine 2.0'14 Summit & World Congress (Maui, Hawaii, USA)

It Doesn’t Have to Hurt: Development and Preliminary Evaluation of a YouTube Video for Parents with Information about How to Help Children with Shots and Needles
Christine Chambers*, Jennifer Parker, Emily Fraser, Justine Dol, Katie Birnie, Line Caes, Marsha Campbell-Yeo, Scott Halperin, Jennifer Stinson*, Anna Taddio, Dionne Dougall-Bass, Miles Sedgwick, Katelynn Boerner

Needle procedures, such as immunizations, and the pain associated with such procedures are frequently cited as among the most feared experiences of children. Considerable and compelling research evidence exists to support a variety of pharmacological, psychological, physical, and combined pain management strategies to significantly reduce procedure-related pain in children. Despite all of the research and clinical practice guidelines, the majority of children undergoing painful medical proced...

A Real-Time Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus
Lindsay Jibb*, Bonnie J Stevens, Paul C Nathan, Joseph Cafazzo, Emily Seto, Jennifer Stinson*

Background: Pain is one of the most common and distressing symptoms for adolescents with cancer. Pain negatively affects adolescent quality of life, impedes cancer recovery, results in adolescent and family distress, and is associated with long-term morbidity. Pain related to cancer also represents a significant cost burden to the healthcare system and families, with pain being the most common reason for cancer patients to utilize emergency health services. Objective: Given the prevalence...

Usability Testing of an Online Self-Management Program for Adolescents with Cancer
Jennifer Stinson*, Lindsay Jibb*, Abha Gupta, France Dupuis, Bruce Dick, Caroline Laverdiere, Sylvie Le May, Lillian Sung, Elizabeth Dettmer, Stephanie Gomer, Janie Lober, Carol Chan

Background: Cancer is the most common potentially fatal disease of adolescence. Disease management is often complex, involving diverse therapies over long periods of time that require frequent monitoring. The Internet represents an ideal means to deliver education, self-monitoring capabilities, and social support to enhance disease self-management by adolescents with cancer. In response, the bilingual (English and French) "Teens Taking Charge: Managing Cancer Online" Internet-based self-manag...

Online Peer-to-Peer Mentoring Support for Youth with Chronic Illness
Jennifer N Stinson*, Sara Ahola Kohut, Lynn Spiegel, Khush Amaria, Mary Bell, Fiona Campbell, Paula Forgeron, Miriam Kaufman, Nadia Luca, Danielle Ruskin, Margaret van Wyk

Background: Childhood chronic illnesses can negatively impact health-related quality of life (HRQL). Many youth with these conditions face numerous barriers to accessing services and peer support including absence of services in many geographic areas, long wait lists and limited availability of trained professionals in non-urban centers. Youth frequently use the Internet in order to communicate with peers, to strengthen existing relationships or to develop new ones. Therefore, internet-based ...

A Social Networking Tool For Collaborative Care For Patients, Caregivers and Health Care Professionals
Jennifer Stinson*, Amna Husain, Margaret van Wyk, Bhadra Lokuge, Kurahashi Allison*, Peter Weinstein, Renee Desjardins, Trevor Jamieson, Eyal Cohen, Adam Rapoport, Joseph Cafazzo, Wayne Ho

Background: Adolescents and young adults with cancer, as well as children with complex health needs are considered medically complex, requiring the care and skills of various healthcare professionals (HCP) who are often based in different places or settings. Effective communication between HCP across institutions is critical to achieving optimal health outcomes; however currently there is no organized system for this purpose, which places the burden of coordination of care on patients and the...

Medicine 2.0'14 Europe (Malaga, Spain)

“Loop” as a Window: Analytics and Social Network Theory to Understand Teams of Care
Trevor Jamieson*, Peter Weinstein, Jennifer Stinson, Bhadra Lokuge, Allison Kurahashi, Renée Desjardins, Wayne Ho, Joseph Cafazzo, Amna Husain*

Background: Loop is a secure online tool for ongoing, dynamic team-based communication centered on the patient for the purpose of collaboration in their care. Loop assembles the patient's actual team of care, and adds the patient and informal caregivers as key team members. In areas such as cancer care and palliative care the teams of health care professionals (HCP) involved are often complex, fragmented, non-static and geographically dispersed. To capture the entire team, Loop is cross-setti...

A Social Networking Tool For Collaborative Care For Patients, Caregivers and Health Care Professionals
Amna Husain*, Jennifer Stinson, Margaret van Wyk, Bhadra Lokuge, Kurahashi Allison, Peter Weinstein, Renee Desjardins, Trevor Jamieson*, Eyal Cohen, Adam Rapoport, Joseph Cafazzo, Wayne Ho

Background: Adolescents and young adults with cancer, as well as children with complex health needs are considered medically complex, requiring the care and skills of various healthcare professionals (HCP) who are often based in different places or settings. Effective communication between HCP across institutions is critical to achieving optimal health outcomes; however currently there is no organized system for this purpose, which places the burden of coordination of care on patients and the...

Medicine 2.0'14 Summit & World Congress (Maui, Hawaii, USA)

“Loop” as a Window: Analytics and Social Network Theory to Understand Teams of Care
Allison Kurahashi*, Trevor Jamieson, Amna Husain, Peter Weinstein, Jennifer Stinson*, Bhadra Lokuge, Renée Desjardins, Wayne Ho, Joseph Cafazzo

Background: Loop is a secure online tool for ongoing, dynamic team-based communication centered on the patient for the purpose of collaboration in their care. Loop assembles the patient's actual team of care, and adds the patient and informal caregivers as key team members. In areas such as cancer care and palliative care the teams of health care professionals (HCP) involved are often complex, fragmented, non-static and geographically dispersed. To capture the entire team, Loop is cross-setti...

Full Paper Publications

JMIR Formative Research

User-Centered Design of a Mobile App for Weight and Health Management in Adolescents With Complex Health Needs: Qualitative Study
Jordan Rivera, Amy C McPherson, Jill Hamilton, Catherine Birken, Michael Coons, Michelle Peters, Sindoora Iyer, Tessy George, Cynthia Nguyen, Jennifer Stinson
JMIR Formativ Res 2018;2(1):e7

JMIR Human Factors

In the Loop: The Organization of Team-Based Communication in a Patient-Centered Clinical Collaboration System
Allison M Kurahashi, Peter B Weinstein, Trevor Jamieson, Jennifer N Stinson, Joseph A Cafazzo, Bhadra Lokuge, Plinio P Morita, Eyal Cohen, Adam Rapoport, Andrea Bezjak, Amna Husain
JMIR Human Factors 2016;3(1):e12

The Perceived Ease of Use and Usefulness of Loop: Evaluation and Content Analysis of a Web-Based Clinical Collaboration System
Allison M Kurahashi, Jennifer N Stinson, Margaret van Wyk, Stephanie Luca, Trevor Jamieson, Peter Weinstein, Joseph A Cafazzo, Bhadra Lokuge, Eyal Cohen, Adam Rapoport, Amna Husain
JMIR Hum Factors 2018;5(1):e2

JMIR mHealth and uHealth

Commercially Available Mobile Phone Headache Diary Apps: A Systematic Review
Amos S Hundert, Anna Huguet, Patrick J McGrath, Jennifer N Stinson, Mike Wheaton
JMIR mHealth uHealth 2014;2(3):e36

Testing the Feasibility and Psychometric Properties of a Mobile Diary (myWHI) in Adolescents and Young Adults With Headaches
Anna Huguet, Patrick J McGrath, Michael Wheaton, Sean P Mackinnon, Sharlene Rozario, Michelle E Tougas, Jennifer N Stinson, Cathy MacLean
JMIR mHealth uHealth 2015;3(2):e39

Mobile Apps for Weight Management: A Scoping Review
Jordan Rivera, Amy McPherson, Jill Hamilton, Catherine Birken, Michael Coons, Sindoora Iyer, Arnav Agarwal, Chitra Lalloo, Jennifer Stinson
JMIR Mhealth Uhealth 2016;4(3):e87

Commercially Available Smartphone Apps to Support Postoperative Pain Self-Management: Scoping Review
Chitra Lalloo, Ushma Shah, Kathryn A Birnie, Cleo Davies-Chalmers, Jordan Rivera, Jennifer Stinson, Fiona Campbell
JMIR Mhealth Uhealth 2017;5(10):e162

Perceptions of Adolescents With Cancer Related to a Pain Management App and Its Evaluation: Qualitative Study Nested Within a Multicenter Pilot Feasibility Study
Lindsay A Jibb, Bonnie J Stevens, Paul C Nathan, Emily Seto, Joseph A Cafazzo, Donna L Johnston, Vanessa Hum, Jennifer N Stinson
JMIR Mhealth Uhealth 2018;6(4):e80

JMIR Pediatrics and Parenting

Online Peer-to-Peer Mentoring Support for Youth with Hemophilia: Qualitative Needs Assessment
Vicky R Breakey, Vanessa Bouskill, Cynthia Nguyen, Stephanie Luca, Jennifer N Stinson, Sara Ahola Kohut
JMIR Pediatr Parent 2018;1(2):e10958

JMIR Research Protocols

A Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus
Lindsay A Jibb, Bonnie J Stevens, Paul C Nathan, Emily Seto, Joseph A Cafazzo, Jennifer N Stinson
JMIR Res Protoc 2014;3(1):e15

Improving Transition to Employment for Youth With Physical Disabilities: Protocol for a Peer Electronic Mentoring Intervention
Sally Lindsay, Jennifer Stinson, Mary Stergiou-Kita, Joanne Leck
JMIR Res Protoc 2017;6(11):e215

Journal of Medical Internet Research

Usability Testing of an Online Self-management Program for Adolescents With Juvenile Idiopathic Arthritis
Jennifer Stinson, Patrick McGrath, Ellen Hodnett, Brian Feldman, Ciaran Duffy, Adam Huber, Lori Tucker, Ross Hetherington, Shirley Tse, Lynn Spiegel, Sarah Campillo, Navreet Gill, Meghan White
J Med Internet Res 2010;12(3):e30

Development and Testing of a Multidimensional iPhone Pain Assessment Application for Adolescents with Cancer
Jennifer N Stinson, Lindsay A Jibb, Cynthia Nguyen, Paul C Nathan, Anne Marie Maloney, L Lee Dupuis, J Ted Gerstle, Benjamin Alman, Sevan Hopyan, Caron Strahlendorf, Carol Portwine, Donna L Johnston, Mike Orr
J Med Internet Res 2013;15(3):e51

Pain-QuILT: Clinical Feasibility of a Web-Based Visual Pain Assessment Tool in Adults With Chronic Pain
Chitra Lalloo, Dinesh Kumbhare, Jennifer N Stinson, James L Henry
J Med Internet Res 2014;16(5):e127

End User and Implementer Experiences of mHealth Technologies for Noncommunicable Chronic Disease Management in Young Adults: Systematic Review
Helen Slater, Jared M Campbell, Jennifer N Stinson, Megan M Burley, Andrew M Briggs
J Med Internet Res 2017;19(12):e406

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