Evaluation of a Personalized Information Website (“Voorlichting Op Maat”): User Experiences and Future Needs

Wilma Kuijpers* Wilma Kuijpers*, NKI-AVL, Amsterdam, Netherlands
Wim Groen, NKI-AVL, Amsterdam, Netherlands
Michel W.j.m. Wouters, NKI-AVL, Amsterdam, Netherlands
Hester S.a. Oldenburg, NKI-AVL, Amsterdam, Netherlands
Neil K. Aaronson, NKI-AVL, Amsterdam, Netherlands
Wim H. Van Harten, NKI-AVL, Amsterdam, Netherlands

Track: Research
Presentation Topic: Personal health records and Patient portals
Presentation Type: Oral presentation
Submission Type: Single Presentation

Building: LKSC Conference Center Stanford
Room: Lower Auditorium 130
Date: 2011-09-18 01:00 PM – 02:30 PM
Last modified: 2011-08-12

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In the Netherlands Cancer Institute – Antoni van Leeuwenhoek Hospital (NKI-AVL) we have developed a personalized information website entitled “Voorlichting op Maat” (VOM), which could be roughly translated as “Tailored Information”. Via this personalized, secure website, physicians can provide their patients with tailored information relevant to the specific situation in which they find themselves. This development builds on research that has indicated that patients who receive adequate and personalized information report, in general, have a better quality of life. In the context of a larger cancer rehabilitation program (Alpe d’Huzes Cancer Rehabilitation or A-CaRe), we will extend VOM to be an interactive patient portal that will facilitate the collection of patient-reported outcomes, will include a survivorship care plan, and will specifically address issues surrounding physical activity and cancer. The overriding goal of this patient portal is to empower patients by providing personalized information and by supporting a healthy lifestyle. This, in turn, is intended to maintain or improve the patients’ health status and quality of life. To optimize the VOM website and patient portal, it is important to elicit feedback from patients and health care professionals about initial experiences with the prototype site, and to determine the optimal functionalities of the interactive patient portal.
To assess users’ experiences with VOM and determine the desired functionalities (future needs) for an interactive patient portal from the perspective of both patients and health care professionals.
Semi-structured interviews will be held with 40 patients (20 lung and 20 breast cancer patients), and with health care professionals involved in VOM (n = 5-10). The content of the semi-structured interviews will be based on the Unified Theory of Acceptance and Use of Technology (UTAUT) model, adapted for the specific health care setting. This model contains 4 determinants that directly or indirectly predict user behavior: performance expectancy, effort expectancy, social influence, and facilitating conditions. The questions addressing these determinants will be modified to fit the specific situation of VOM. Additional questions will be posed about sociodemographics, the content of the website, actual experience with and perceived quality of VOM, and familiarity with the internet and web-based information technology in general. We will also assess patients’ perceived health status and quality of life (the EORTC QLQ-C30 + condition specific modules). Clinical data (diagnosis, stage of disease, treatment) will be obtained from the medical records. Finally, desired functionalities for the interactive patient portal will be determined. Given the pilot nature of the study and limited sample size, the data analysis will be primarily descriptive in nature.
Research in progress. Results will be presented during the conference.
Research in progress.

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