OncoCompass: an E-health Management Platform to Facilitate and Innovate Supportive Cancer Care

Cornelia Van Uden-kraan* Cornelia Van Uden-kraan*, Vu University Medical Center / Dpt Otolaryngology - Head&Neck Surgery, Amsterdam, Netherlands
René Leemans, VU University Medical Center / Dpt Otolaryngology - Head&Neck Surgery, Amsterdam, Netherlands
Remco De Bree, VU University Medical Center / Dpt Otolaryngology - Head&Neck Surgery, Amsterdam, Netherlands
Pim Cuijpers, VU University / Dpt Clinical Psychology, Amsterdam, Netherlands
Niels Peek, NIPED, Amsterdam, Netherlands
Roderik Kraaijenhagen, NIPED, Amsterdam, Netherlands
Coen Van Kalken, NIPED, Amsterdam, Netherlands
Irma Verdonck-de Leeuw, VU University Medical Center / Dpt Otolaryngology - Head&Neck Surgery, Amsterdam, Netherlands

Track: Practice
Presentation Topic: Web 2.0 approaches for clinical practice, clinical research, quality monitoring
Presentation Type: DEMO Interactive Session
Submission Type: Single Presentation

Building: LKSC Conference Center Stanford
Room: DEMO Interactive Session Upper Lobby
Date: 2011-09-18 12:05 PM – 12:20 PM
Last modified: 2011-08-12

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In the Netherlands, government policy statements and national guidelines reflect broad scientific and social support for a structured, integrated approach to supportive care in cancer patients. However, care providers often lack the operational and organizational means to deliver care in a cost-effective manner. IT applications can be used as helpful tools and have the potential to improve the efficiency of care. By developing an e-health management platform supportive cancer care may be facilitated and innovated. Eventually more insight will be obtained into supportive cancer care flow including the need for and use of minimal intervention strategies, self-help programs, and allied health services. Also, more insight will be obtained into possible determinants of supportive cancer care and success of intervention such as socio demographic and clinical parameters, co morbidity, and coping strategies.Our objective is to develop the OncoCompass, a personal e-health portal that supports cancer survivors by finding and obtaining optimal supportive care, adjusted to their personal health status and situation. Methods
The OncoCompass is based on the PreventionCompass: an e-health portal which facilitates direct-to-user delivery of individualized preventive healthcare. We adapted this generic model for cancer survivors based on the Dutch national guidelines “Cancer Rehabilitation” and “Screening for the need for psychosocial care”. The basic assumption in developing the OncoCompass is to implement the most recent scientific insights as obtained from literature reviews. Quality of life and lifestyle domains incorporated in the OncoCompass were reviewed by a multidisciplinary oncology team and experts in the field of cancer rehabilitation and supportive care. To ensure adequate uptake of the OncoCompass, end-users and other stakeholders are involved in the development process. Currently, needs assessments are conducted among cancer survivors and care professionals. Parallel, the usability (user performance, satisfaction with content, interface and functionality) of OncoCompass is tested by end-users by means of scenario-based testing with Morae™ software. Following on from this, the OncoCompass will be refined.
By means of the OncoCompass patients can independently fill in questionnaires on quality of life (physical, psychological, social, and spiritual) and lifestyle. Data are processed in real-time. Patients can view the results by means of a well-being profile. Supported by an evidence based knowledge and decision support algorithm, advices are given automatically concerning supportive care and lifestyle. Based on the individual well-being profiles, participants can be directed towards guided self-help treatments or professional care providers: intervention mapping. Web 2.0 features will be added to the OncoCompass, such as an intervention review system, by which participants are able to provide feedback on the intervention to which they were directed by the OncoCompass.
The OncoCompass has the potential to be used as a helpful tool in careful monitoring quality of life and outcome and to deliver supportive care in a structured, comprehensive and cost-effective manner. However, the OncoCompass is still in the development stage. To evaluate the feasibility and (cost-)effectiveness of the OncoCompass we will conduct several multi-centre studies among cancer survivors.

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